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The best & worst products for psoriasis

Hello!
So anyone following this blog will know that I’ve recently started publishing some YouTube videos called ‘Psoriasis Diaries’ well here’s the latest one in that series, where I talk about all of the different products that I was prescribed or bought over the counter and how effective I found them to be.

It’s a bit of a long one but there’s lots of products to cover and lots of opinions!

First up, I talk about the products over the counter. For this, I would suggest you get a basic moisturiser, something which is a good idea for anyone to have, wether you have psoriasis or not! Secondly, I’d say to wait until you see a Doctor, dermatologist or at least a pharmacist before buying anything that’s more specific. This might not be the best product for you and could make things worse.
I found Dermalex’s psoriasis product to be very effective and was one of the least irritating products of all.
It’s also a good idea to buy some calamine lotion to use in the shower instead of soaps which could aggravate your skin. Personally, I still used shower gel in areas that my psoriasis was minor and in areas where you’re more likely to smell. This was fine for me.

Then in terms of prescribed products, I’d always opt for the cream option over the ointments which were often very thick, greasy and incredibly uncomfortable throughout the day. I go into a bit more detail in the video below.

I also mention my experience with UV light treatment and how it actually made my guttate psoriasis worse. I finish the video by discussing the most successful treatment I had, which was Ciclosporin. An immune-depressant drug which was a miracle treatment for me (I promise I’m not being sponsored to say that) and it cleared my psoriasis up almost instantly, although there were a few side effects.

Enjoy the video and please, please comment over on YouTube if there’s anything you’d like me to talk about in future episodes and remember to subscribe to get all of the future instalments straight away.

Thanks!
J x

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Psoriasis Diaries: Video Two – My Story and how I got ‘cured’

It’s important for me to share my story.
When my psoriasis (and confidence) was as its worst, it was communication with friends, family and online strangers that helped me more than any lotion or medication.

The video below is the second part of my psoriasis diaries videos. In this instalment, I tell you my entire experience of psoriasis from the first doctors appointment, to the failed UV treatment and successful ‘curing’ medication.

It would mean the world to me if you could share this video around. Hopefully it will help someone going through the same emotions as I was. Psoriasis is a physical skin condition, but let’s not underestimate the impact it can have on someone’s psychology.

I will do another video this week, which will talk through all of the different lotions, potions and creams I was given, as well as some other types of treatments. Please do subscribe to the YouTube channel and click thumbs up…!

Psoriasis Diaries: Video One

Here we go, the start of a new venture.
I’ve decided to start vlogging about my psoriasis experience via YouTube.

Check out the first video below and be sure to subscribe to the channel for all the instalments and click the thumbs up!
I’d be really keen to hear your thoughts and if there’s anything you’d like me to include in future videos. I want to talk more about the treatments that helped me and the ones that didn’t. Hopefully it will be a benefit to someone out there in the big wide world.

Speak soon,
J x

Overdue Psoriasis update… Get involved!

Hello everyone!
I can’t tell you how touched I was that people have kept visiting this blog even though I failed to update it.

Well, I am pleased to let you know that the I have been clear of psoriasis side January 2014 – around 10 whole months now. HOORAH!

As I mentioned in my blog post back on Christmas Eve, my psoriasis had returned with a vengeance. It broke my heart, but luckily it didn’t stay for long.

I also mentioned in my previous blogs, that I work in the media industry as a journalist across showbiz and entertainment publications. Well, recently I’ve taken to YouTube and have started posting videos, sharing my thoughts on everything from reality TV to gig reviews and sharing what I’ve been up to. Hell, I don’t know if anyone even cares about any of it, but hey, I’m going to keep trying! Even if it does feel rather relentless and hopeless at the moment.

I’ve decided to do a video about my struggle with psoriasis and this is where YOU come in. I want anyone reading this to comment below or email me at jonhornbuckle@gmail.com with anything you’d like me to discuss in the psoriasis video. Do you want to hear my personal story from diagnosis to most recent clearing? Want to know what treatments did and didn’t work for me? Or if you have ANY questions about my psoriasis and how it affected my life, please do drop me a line – I would love to hear from you and I promise to answer all the questions in a video and then pop it on here.

So email me at jonhornbuckle@gmail.com or post a comment on here. Also, if you’d like to check out my current YouTube videos then please do! That’s all over at http://www.youtube.com/jonhornbuckle

Thanks!
Jon

Driving Home For Christmas…

Well, i’m actually on a train from London to Southampton, but you get the idea.
 
Turns out my christmas present from my body this year was the return of psoriasis. If it was any other time of the year I would probably be much more upset but because it’s the festive season, i’m slightly more perky than I would’ve otherwise have been.
 
After I was on ciclosporin, the drug which stops your immune system, my skin totally cleared up. Yes, there were some less than pleasant side effects such as headaches and limbs frequently going numb but overall I was delighted with the results, especially after 8 months of insecurity and ridicule. 
 
Now the psoriasis has returned and is back with a vengeance and i’ve HAD ENOUGH. It’s now appearing on body parts that it has never been before, but get your mind out of the gutter, i’m talking about my hands and face. To be honest I think it would be less embarrassing if it was my boy parts as nobody sees that. 
 
I talk to people face to face for a living, doing interviews with celebrities for magazines and newspapers and it’s slightly awkward when you see their eyes take a double look. I’ve tried to get an appointment so that I can get back on the ciclosporin or something stronger but because it’s the christmas period there aren’t any hospital appointments for another few weeks.
 
The hospital did say that I could go in for 5 days of intensive steroid treatment, but that’s not really how I want to spend Christmas Day. Though if it gets any worse, that may have to be the plan. 
 
As I said at the beginning of this post, i’m on my way to my parents house for christmas now but the fire in the living room aggravates it and i’m also worried about being far away from hospital should it worsen rapidly. 
 
My body is driving me crazy, like ants constantly walking over me and it’s beginning to interfere with work and social plans again. 
For now I will try to be merry and have a great christmas and then in January, when it will be a year since my psoriasis developed, I will tackle it HEAD ON and STOP IT. (i hope)

Doctors Made A Decision.

I had more tests on Monday (they took around ten tubes of blood and also the usual other tests) and i’ve been advised to return to using steroid creams and ointments for the next few weeks and if my skin gets worse we will go back to drugs to suppress the immune system but next time it would be one which is taken once weekly. I’ve got all the info on that drug lying around somewhere so will do a blog on that soon! 

It’s been less than a week since I was instructed to stop taking ciclosporin and already I can see and feel my skin returning to it’s less than ideal state. DAMN. 

One Step Forwards, Ten Steps Back

In my previous blog post I had been on Ciclosporin for around two weeks and I spoke to you about the side effects i’d been experiencing from the drug which stops your immune system. The side effects got worse but I remained incredibly happy with the improvement it made to my skin, it entirely cleared up the psoriasis but sadly hospital staff have insisted I stop taking the medication because of increased pain around the chest in addition to severe headaches and frequent bouts of numbness to my arms and legs. 

On Monday I will have another appointment to hospital (surely my 100th this year?!) and there they will take more tests to try and discover if the issues are caused by the drug or are separate worries. I guess I can’t over-think too much until we know the facts on Monday but I can already feel my skin returning to how bad it was before after just half a week away from ciclosporin. After two months of clear skin I think it would be so upsetting to return to how things were between January and August but I feel like the decisions aren’t in my hands. 

Will keep you posted.